Tuesday, April 19, 2011

Portfolio: The Language of Disability

Major Projects:
Positioning Essay
Verbal Portrait
Visual Portrait
Critical Bibliographic Essay
Tasia's Story
"Big" Ethnography

Supporting Projects:
Reflections of Stone Belt

Blog 1: The Art of Stone Belt
Abstract: The art piece Cicada Data is a reflection on the Stone Belt Community and the opportunities, provided through art, offered to Stone Belt Clients, Staff, Volunteers, Community Members, and more.  Art is representative of empowerment, breaking through the stigmas of disability, and a bridge of communication between individuals who have disabilities and individuals who do not. Below, is a blog post titled The Art of Stone Belt.

Abstract: Stone Belt fosters a community driven by understanding and opportunities to exert personal choice. By volunteering within the Stone Belt community, I learned how the creation of community takes place through daily interactions between clients. These interactions, which take place over days, months and even years, nurture the principals up held at Stone Belt. Specifically, these interactions promote the principals of building relationships, achieving through employment, and acting out self-determination.  

Blog 3: A Dinner in the Life...
Abstract: This is a reflection on my visit to Southern House, where I had dinner with Tasia, her roommates and two staff members.  This piece represents my experience with Tasia outside of Stone Belt, her workplace, into her home.  Over dinner, I discovered more of Tasia’s character and experienced the supports provided by Stone Belt in a new way!

Thursday, April 7, 2011

A Dinner in the Life…

       Each week, as I work with Tasia on the purple tubes, she tells me about the dinner she had the night before. Tasia loves filling me in on her latest dish and desert, while then sharing about the movie she watched previously in Room 1. On this day, our conversation focused on stir fry and Komodo Dragons. As I listened, I wondered what it was like for her at home. Who was she outside of work?
       See, Tasia and I’s “dinner and a movie” conversations always seem to remind me of home. We both love home cooked meals! Without hesitation, I asked if I could join her for dinner sometime at Southern House, a group home served by Stone Belt. With a smile, she agreed.
       After a few emails and approval, I was headed to Tasia’s for dinner! On my way, I was a bit nervous and I only half way knew where I was going. Once I finally arrived to Southern House, I was greeted at the door by Betsy. From past conversations with Tasia, I had learned she has 5 roommates and I have met a few (including Betsy). Southern House was bigger than I expected, but right away I got a great sense of home comfort. There in the living room sat Val and Dixie. I was excited to realize just how many of Tasia’s roommates I had already met with at Stone Belt. The smell of home-made lasagna filled the air and Staff, Rose and Stephanie, welcomed me kindly. 
       My dinner experience with Tasia was important because I got to see into some of the stories she shared with me while with her at Stone Belt. I looked around at all the photos and awards on the wall and chatted with a few of the Staff members she always referred to. Tasia showed me her room, which she decorated herself. From the sea shells on her dresser, I learned she hopes to travel to collect sea shells along the way. It was through viewing the hand crafted art, the family photo album, and the horse decor that helped me gain a more well-rounded understanding of Tasia! Tasia is an accomplished rider with PALS, a loved family member with brothers, nieces, and pets, and also an artist who creates art of many colors!
       Although Tasia has only been at Southern House since around Christmas, her roommates and the staff were all in-tuned with Tasia’s character. Everyone was excited to share stories and show me their room. Angie, Tasia’s roommate, shared how she advocates for individuals with disabilities by traveling and giving speeches. Angie’s wheel chair doesn’t stop her from self-advocacy! I learned that Betsy is a member of a church choir and practices every week. Through fast facts like these, I saw Stone Belt in a new light because I realized how far reaching their mission is. Stone Belt truly empowers people! All in all, my visit at Southern House was more than dinner; instead my visit was an eye-opener! Not only did I get to spend time with Tasia, but I was given time to spend with her Stone Belt Family too!   

Monday, April 4, 2011

A Community’s Lesson of Ability

Although my first experience at Stone Belt took place well before I started volunteering, I started my service learning experience without knowing what really to expect. At my initial introduction to Stone Belt as a service learner and volunteer, I meet with Gwyn (an ACE) and Amy (the Community Engagement Director). From the start, I was informed that the goals of Stone Belt revolved around creating an empowering environment to connect clients, volunteers and community. Stone Belt, I have observed, prides itself on giving individuals choice through opportunities in the areas of employment, relationship, recreation and more. Stone Belt Staff members seem to have this general understanding of Stone Belt Clients, that each person is a person first and each person has the ability to participate in a meaningful way. One of the most powerful things, upon working with Stone Belt, is learning to see the “ability of disability”. I learned this lesson of ability by working alongside Tasia, a long time client of Stone Belt.
After a brief introduction to Susan Ross, I met with Tasia for the first time. Before meeting Tasia, though, I was informed that she had seizures and that I should be aware of what this may look like, not to be afraid but to be prepared to inform staff. Right away, upon learning this, I felt connected to Tasia because my best friend had seizures often…although for different reasons. This connection was more of an observation because I began to observe just how alike I am to the clients around Stone Belt…something one may not see on initial contact.  Another factor, I was told that I wouldn’t have a hard time communicating with Tasia, that she could speak clearly. I hadn’t even met Tasia and yet I had a slight picture of who she might be. But again, I quickly realized I didn’t know what to expect from my experience!
          Once I finally met Tasia, I observed her wheel chair and helmet. Both were due to her seizers. Her wheelchair was not permanent and she used it only for a foot injury incurred during a seizure (currently she is out of the chair and traded her wheelchair for boots to secure her ankles). Her helmet, she wears daily, to prevent herself from potential injury.  Small, physical characteristics or “accessories/artifacts” were the things I noticed at first. I watched as many men and women, all of whom have some cognitive or physical disability, worked together in the Cook Medical area in Stone Belt. I guess I was surprised that everything was so organized, each person knew what he or she had to do and each had their own area of the room to get their work done.
            On my first day, I rolled Tasia to her locker, where a staff member (Jonathon) kept her numbers. See, Tasia keeps track of her work in a notebook. She “labels water tubes” and also puts the purple pieces around the tubes and each day has someone count how many she labels. The tubes, I’ve learned, are sizes 51 or 69. Further, though, it’s not these small details that I picked up that I find so interesting at Stone Belt and it’s not the new vocabulary either. Instead what I observe most at Stone Belt is community and understanding between clients.
For instance, that first day, I was reaching for Tasia’s lunch box and when I handed it to her, she dropped it and I thought something was wrong. Sure enough, another client quickly turned to say, “She’s having a seizure!” From this moment on, I began to see that the clients had grew together, worked together, and had learned about one another in many ways. Clients knew who was allergic to which foods in the break room, who was dating who, and who had to sit in a chair with arms, in case of seizures. The break room, where everyone ate lunch, is where I began to realize that Stone Belt offered a space for individuals with disabilities a place to be themselves…to be capable human beings, able to have everyday interactions.  Another example is when I met Jeff. He was excited to meet me, but more excited when Angel (another client) walked by. He quickly said, “We grew up together!” After they laughed together and repeated the saying, Jeff says,  “She is my boyfriend and I am going to marry her!” I smiled because she walked off in laughter…just friends sharing a moment. The community thriving in Stone Belt is stronger than many communities I interact with because it seems everyone is somehow in tune with the other. I have noticed how I can have a conversation with Tasia and others will chime in with the answers, as if we were having a group conversation. I have learned to not be surprised when others input their response from all the way across the room.
From simply interacting with Tasia, I have learned her favorite shows and foods. I have learned that she has accomplished many things, like being a long time horse rider with PALS. She’s shared about her family and her home life at Southern group home. I have met some of her house mates and heard about the pink decorations in her room. All in all, it’s the small details that make up this bigger lesson of community that I have been most inspired to pick up from Stone Belt. I am learning that Tasia’s ability to interact, or choose not too, are all apart of who she is as a person. She has choices and she gets to make them for herself. Tasia works 16 hours a week and takes part in activities like cooking dinners and doing art. Through the Stone Belt Community, she is connected to a Best Buddy and to numerous opportunities to participate in living; her way. Simply, from Stone Belt I have observed that the “ability of disability” lies within the community created through positive interaction and personal choice!

Wednesday, March 9, 2011

Discovering the Language Behind Disability

The issue that I plan to explore revolves around social discourse, language, how words are used, and how the culture of a community effects personal and collective perceptions. Specifically, I am working to add to the conversation around the purpose and effect of language. How does language and the way it is used influence how someone is perceived? How does this perception then effect how an individual seems himself? Further, how does labeling language impact a group of individuals within a given community? Lastly, for the purposes of this project, I will center this discussion on individuals with physical and cognitive disabilities at Stone Belt, while looking into the language of disability in the wider community, in hopes of building a discussion around what language can do: limit, empower, provide access, etc. 
In order to add to this discussion, I will focus on several sources. First, I will use Catherine Prendergast’s “On the Rhetorics of Mental Disability.” Prendergast’s area of study includes topics around composition and rhetoric. Her specialization specifically involves “tracking the effects of social formations-disciplines, institutions, texts-on the creation and management of knowledge” (45). Presengast looks into how formal institutions impact personal wisdom, to understand the development of knowledge in relation to mental disability. This relates to the issue I seek to develop in multiple capacities.
First, Predergast argues how the lack of language for mental disabilities leaves those with interest in mental disabilities unable to speak on the topic. Not only does she have to leave her “usual terrain” (within academia) to discover a language that addresses mental disability, she argues that “no one can hear” individuals with disabilities when they themselves speak of it (47). How does this affect the language that is deemed acceptable toward individuals with disability?
Often times disabilities are broken down into categories. Disability is categorized in texts (like the DSM), in public documents, and in medical diagnosis. Prendergast even notes how the prison system has a place for those with disabilities, a “mental hospital within the facility”. This small example point to how people with a disability are often categorized in greater society, broken off from the rest of the population. Her work adds to the discussion by outlining how language, or a lack thereof, often leads to an overall misunderstanding of individuals with disabilities. This is important to my issue in that I feel these misunderstandings shape perceptions that can essentially influence personal feelings of empowerment or disempowerment.
The second source to bring into the conversation is titled “Socially and Culturally Sensitive Communication: Using First Person Language” by Margaret Ellmer. Although Ellmer’s work is not long in length and has minimal sources connect to it, I believe her piece adds to the conversation of perception, language, and disability in a multitude of ways. First, Ellmer explores the importance of Person First Language. As a Special Education teacher, Ellmer values the importance of talents, self-worth, and ability before disability. By quoting Carols Russell’s article Teaching Exceptional Children, Ellmer deepens her view of the importance of First Person Language; “Person first is a philosophy reflected through language and actions by putting the person first and the disability second.” This topic also reflects the Stone Belt community’s views, they too believe in the value of Person-First Language.
She recommends using Person-First Language, researching how this Person-First Language influences perception, and lastly seeks to raise awareness on the benefits of sensitive language. What I liked most about Ellmer’s article was her “history” of the terms used to describe individuals with disabilities. From using words like “handicapped” and “crippled”, to replacing terms like “mentally retarded” with “intellectually disabled” we see a change in the meanings/perceptions of words.  It’s interesting to note why the words we use in today’s language have evolved…to be more inclusive and respectful, but what meanings do the terms of disability still carry? How is it that language can be so empowering or highly disempowering?
Both works are important to the issue of language, perception, and disability because both add to the idea of discovering a way to use language in an empowering way…in a way that is not labeling, limiting, or stereotypical.

Wednesday, February 16, 2011

The Ability of Disabilty, through Art

       Art is defined as “the quality, production, expression, or realm, according to aesthetic principles, of what is beautiful, appealing, or of more than ordinary significance.” For Stone Belt clients, art is more than an expression of beauty; art is a form of empowerment through self-discovery.  
       For over 50 years, Stone Belt has worked to create an environment promoting self-determination to inspire families, the community and individuals with developmental disabilities. Along with many programs, the Stone Belt Art & Craft program started as an effort to reach out to the community and transformed into a platform for possibility. Through the Art & Craft program, clients become artists. One artist, Carolyn Abbitt, has become a community favorite and has inspired many community members to collect Stone Belt art pieces!  
       One of Carolyn’s pieces, Cicada Data, captures color and imagination with blue beaded trees, beautiful butterflies, and shaped squares of wonder. It’s interesting to note the different color wing of the bee/butterfly at the near left corner of her piece, so lively and different.  The piece has many artistic patterns too. For instance, the six trees appear to be blowing in the wind in opposite directions; three in one direction, the other three another direction. Also, each tree has three blue beads on top of its trunks, except the two nearest each other that host 4 beads. Simply, the piece is “of more than ordinary significance” as is the artist!
       The power of each Stone Belt art piece allows the artist to express personal choice, while giving the audience a chance to interpret beauty and creativity individually. Simply, the art frees both the artist and spectator in a way that gives the artist a chance to define their character outside of disability. Art, in this way, acts as a bridge between individuals with developmental disabilities and other community members. Through art, we are all given the opportunity to discover “the ability of disability.” In other words, art proves that disability is not all together disabling, it doesn’t stop someone from having the ability to create, to live, and to be talented!
       Overall, art captures the culture of Stone Belt it that is paints the truth of Stone Belt’s efforts; prepare, empower, and support people through community participation. For Carolyn, art evoked confidence and she discovered herself to be artist. The Stone Belt Art & Craft program gives artists the space to create, sell, and share their art. In this same way, art gives the community an opportunity to discover the power behind self-determination!



Wednesday, January 26, 2011

A Class Misunderstood


Ray Nicole
Blog #1
The Assignment:
Option One Analysis

Focus Reading: Toxic Literacies, Denny Taylor
Focus Terms: Colonization, culture/subculture: (Field Working), enculturate (Taylor)
·         Colonization the takeover of less powerful people by more powerful people who demand conformity to their group’s ideas and values, as in a territory ruled or annexed by another country
·         Culture the behaviors, patterns, rules and rituals of a group of people who have contact with one another and share common languages
·         Enculturate the process by which an individual learns the traditional content of a culture and assimilates to its practices and values

                                                      A Class Misunderstood
      Throughout a series of excepts from Toxic Literacies, Denny Taylor illustrates how lower class members of society become buried under bureaucratic paperwork that often keeps them in a state of despair, without an opportunity to receive help. Taylor argues that the official documents, used to determine who receives assistance, “takes away their (lower class citizens) rights and privileges and leaves them powerless to protest because they have no access to the text” (11). In other words, these toxic texts act as a barrier between those seeking assistance and those in control of providing the desired support. For the purpose of this blog, I tend to look into Taylor’s work in relation to two key terms, colonization and culture/subculture, from the text Field Working by B.S. Sustein and E.C. Strater.
     To Taylor, toxic literacies encompass documents like emergency assistance forms, food stamps, and job applications geared toward the homeless, the poor, and those reaching for financial stability. He points out how through these official forms of documentation “federal, state, and local agencies have turned poverty into a bureaucratic industry” (10). In the simplest terms, this paperwork dominates the lives of lower class society.  This process of control is defined in Field Working as colonization. Colonization is “the takeover of less powerful people by more powerful people who demand conformity to their group’s ideas and values…” (499). To my understanding, Taylor’s aim to expose toxic literacies as an effort to free the lower class, challenges upper class society to see lower class society as a population of individuals in need of an honest opportunity, not a handout. Taylor’s efforts to understand the bureaucratic system of paperwork and those involved with it, uncovers how the wealthy class has worked to colonize the peoples’ outside of their culture of affluence.
     Throughout numerous stories, Taylor puts names to individuals struggling to survive under policies designed to slow or stop the process of accessing help. On top of the toxic texts come labels of “lazy,” “illiterate,” and “dysfunctional.” All of which are used as a way to further alienate a class of people whose culture has taught them to accept the system as is, instead of continuously fighting against it. Take for example the first man Taylor describes. He worked several odd jobs, dealt with severe health issues, and still held onto the idea of his children receiving a good education.  Also, recall the women who obtained a degree, and hopped buses in an effort to find a job, which she never found (2-3). In both cases, hope faded into the reality of poverty and its devastating effects.
     If it’s true, that those in a position to exert power over the life of another are using text to do so, how then can this same class of people look down on the poor when they learn to survive by deviant means? In other words, when someone is refused help, is unable to find or keep a job (for whatever reason), and then turns to selling drugs to feed their family and sustain their home… why are they punished further by criminal sanctions, disheartening labels, and angry judgment?  Is this process yet another means of colonization, of further dismissing the reality of those in need, through paperwork, rules, policy, and regulation? A similar situation is told by Taylor, who illustrated the story of Cindy. Cindy takes drugs to ease her pain, both emotional and physical pain, and is then locked up and stripped of her children (8-9). To make matters worse, she is a junkie in the eyes of the judge, a hardly understanding society, and to whoever decides to keep that label upon her.
     The process of colonizing the lower class, through text, fails to take into account the culture of those experiencing poverty. Instead of trying to learn about, understand, or make better the lifestyles of ‘poor’ people, the affluent class is trying to make the class below them conform to their personal way of living. In all reality, their efforts are nothing more than foolish. How can a class of people experiencing poverty, destruction, and struggle grasp onto the ideas of class benefiting from “proper” education, exposure, and experiences, a world that seems so far from reach? The lower class has learned to remain in a culture full of factors demanding failure. Although much of this culture accepts deviant means as a way of survival, they continue on living the best way they can. Just as the upper class sees its lifestyle as correct, so too does the lower class by way of Enculturation, as Taylor might say.